Back in Doernbecher.

First, let me once again thank all of you that participated in the Pancake feed on Saturday. It was wonderful to see our friends, family, co-workers, and community members who were so generous with their time and donations.

As you most likely already know, we are back in Doernbecher Children's Hospital as of Sunday. Claire has, for all practical purposes, entered Status Epillepticus--the state of constant seizing. Late last week, Claire stopped responding to Ativan, the drug we used to break extended length seizures. After several adjustments to the medicine regimen with very little results, the Doctor recommended that we get admitted back into the hospital.

The Neuro team at Doernbecher's have not provided many new ideas. There are only four drugs left to try, but there is significant hesitation to start on any one of them. Two are fairly new, but don't show great potential for treating the type of seizures Claire has. One is a drug with really nasty side effects. And the last is a drug very nearly related to one Claire is already on.

So where does that leave us? There is one idea being passed around that I ask your prayers on. The Doctor's are considering doing what amounts to a brain reboot on Claire. They would place her into a medically induced coma for several days, then slowly reawaken her. As you can imagine, this is risky. But, no less risky than the large amount of drugs she is already on or the consistent seizing that could potential damage her organs.

We ask for your continued prayers and support. Pray for wisdom for the doctors and relief for Claire, Rebecca, and I.

-Jake