Claire's update

I apologize for the lack of update in a few days, but honestly, Claire is doing her typically thing of throwing us surprises that we weren't sure how to describe. She is stable and only had light seizure activity over the past 72 hours. We have been hesitant to share this as we don't wish it to be interpreted as great news, improvement, or progress. We suspect it is a honeymoon period from her newest drug Depakote. This has allowed us a reprieve, getting her exubated, and gaining us some quality time with Claire at her baseline. However, honeymoon periods rarely have lasted more than a week for Claire and there is still the substantial risk of liver failure in the near term. We plan on keeping Claire at Doernbecher's for at least this week and we will begin a re-evaluation on Friday, assuming she continues to do this well. Beware that Rebecca and I are thankful for this time but, noting Claire's history, we are not optimistic that the honeymoon will last much longer. Your prayers and outpouring of love has no doubt contributed to this reprieve. The support and kindnesses carry us forward each day. To that, I humbly thank you. We will keep you apprised as events occur.