more updates

As you have seen from recent photos, Claire is surprising us with good days. Rebecca Hales and I would like to reiterate that our rational minds do not think this will necessarily last. However, we are now at a place where we must consider next steps. Tomorrow we will begin planning on how best to bring Claire home. We will likely use Hospice. I ask you to continue to pray for us. We need to make a plan that makes this as comfortable as possible for Claire if things turn for the worse while she is at home. Quite frankly, as experienced as we are with medicine, Hospice and Post Mortem planning is scary and stressful. But this long term hospital stay is waring thin. — at Doernbecher Children's Hospital.