We are home

We came home...

Claire is home. As our Neurologist so appropriately stated, "With Claire it's like we all have to just hold hands and jump off the cliff together." You all know she is incredibly resilient and endlessly surprising. The Depakote appears to be giving her more than her typical honeymoon and as of yet there has been no change to her liver enzymes. That said, we brought her home with DNR paperwork. Although neither of us are thrilled with the risk of Claire passing away at home, Rebecca and I can't take the extended hospital stay any longer. We have many nurses and doctors we consider family now, but the stress of our family splitting time apart takes its toll. Claire is as stable as she has been in the last year. For that, we are grateful. We will keep you updated on Claire's status, particularly if she seems to decline. Thank you for your grace and prayers in the past weeks. For some, they choose to deal with such matters privately. However, I believe that drawing on your friendship and encouragement provides us with a strength we would not have otherwise. For those experiencing similar situations, I would ask that you lean on your friends and seek public outlets for your grief. God bless you all.