Easter Sunday

Easter, the day of Christ's resurrection is a day of new beginning and new life. I have thought much this year about how Westerners adopted symbols of fertility like the egg and the rabbit for this day. The life of our daughter is an incalculable blessing on this day.

Let me thank you for your continued prayer. Yesterday was a rough day. We started off with about 1-2 seizures per hour for the first 8 hours of the day. But, in no small part due to your faith and prayers we turned a corner at 4:00pm. Claire received step-up levels of Phenobarbital until her seizures stopped. She had a feeding late in the day where she was alert and interactive, giving some much needed peace of mind to her mother and I. Overnight she fed well, consistently, and had no more seizures.

Claire's activity level on Friday was likely a contributing factor to her troubles yesterday (in our opinion). Rebecca and I were starkly reminded of the frailties of her brain. We have limited how often she is held and are treating her with the delicacy of a Faberge Egg.

Claire has a very big day tomorrow. A full lab panel, an EEG, and an Ultrasound will likely be the determining factors as whether or not she can come home by the middle of the week as we hope. We ask that you pray through tomorrow during these vigorous activities.

We hope you took time this Easter to visit church and take some time with your families. Each moment is precious.