May, 1

Claire has had her latest MRI. I wish I could say the results were astounding, but they revealed only that the hemorrhage area was a little smaller. This, of course, is very good news in the long term, but doesn't provide any short term answers.

Today Claire was relatively active and was seizure free. My hope is that she will go several days straight without a seizure and we can draw down the four medications that are in her system. Doctors are also looking at other drug options.

The game now seems to be Pharmaceutical Roulette. In any case, adult or infant, the goal of Epilepsy treatment is to prevent seizures with as few drugs as possible--ideally one. I think we are a long way away from that. So we are in a stage of trying different things. Pray for her to simply stop her trends of seizures after a couple of good days. The damage is healing so perhaps the seizures can become fewer and fewer rather than breaking through more and more drugs.